CrimeaPRESS reports:
Crimean Children’s Hospice held a press conference «Learning to live: caring for seriously ill children.» As part of the PROparents project, which is implemented by a charitable organization, families with terminally ill children receive advice from leading palliative care professionals. The press conference was attended by Rustam Mikhaylov, a doctor, specialist in the health of the digestive system, a member of the Expert Council of the Children’s Palliative Charitable Foundation, a palliative care doctor, head physician of the Elizabethan Children’s Hospice, Irina Ershova, and Elena Babakova, coordinator of the PROparents project of the Crimean Children’s Hospice. The project «Proparents» of the Crimean Children’s Hospice, experts say, helps parents get answers to questions that concern them.
Education, information is the most important thing in our work. I always tell parents: do not be afraid to ask — we have accumulated a lot of practical experience, which we are always happy to share— says Rustam Mikhailov.
The team of the Crimean Children’s Hospice attracted leading specialists to the «PROparents» project who help families with seriously ill children.
Parents are part of the palliative team. An educational information project for them is an important support that gives them self-confidence.— emphasizes Irina Ershova.
The project of the Crimean children’s hospice «PROparents» is being implemented with the support of the Presidential Grants Fund. For four months, 96 parents from all over the country became its participants.
We always welcome feedback and suggestions from parents on what else can be done to help them care for their children. We are for openness, communication and comprehensive assistance to seriously ill children— Elena Babakova notes.
You can watch the recording of the press conference “Learning to Live: Caring for Seriously Ill Children” here https://www.youtube.com/watch?v=3R9Po3UaA9c&t=7sas well as in the group Crimean Children’s Hospice (vk.com)
In the “PROparents” project, in addition to medical information, families also receive the help of a psychologist and a social worker. A physical therapist consults families individually at home. There are webinars and online lectures on tracheostomy and gastrostomy care.
You can take part in the project «PROparents» by the link https://forms.yandex.ru/cloud/63f379e0c769f1068081de39/
You can support the wards of the Crimean Children’s Hospice on the website of the organization Crimean children’s hospice.rf
Crimean children’s hospice is the first charitable organization in the republic that, since 2019, has been providing and developing comprehensive care for seriously ill children with palliative status on a regular basis.
Now 60 children are under the care of the organization, 7 of them are on ventilators, 1 child is on NIV. The hospice buys and delivers to families with terminally ill children the necessary medical supplies, specialized food, medicines, hygiene products, medical equipment, and provides parents of children with social, spiritual and psychological support.
The Crimean Children’s Hospice implements such socially significant projects as «Proparents», «Instead of Mom», «Dobronyanya», «Field Service», «Development of Human Resources for Palliative Care for Children in the Republic of Crimea», «Creation of a System of Comprehensive Palliative Care for Children in the Republic of Crimea» and plans to build the first children’s hospice building in the republic.
Crimean children’s hospice:
- +7 985 247 47 08
- www.crimean-hospice.ru
News of the Crimea | CrimeaPRESS
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